Join Pasta Pomodoro for the Celiac Awareness Dinner with Dr. Ruti Verma from 6PM to 7PM. Kids face painting, raffle tickets, book signing by Elena Torsiello and a percent of the proceeds will be donated to Childrens Hospital of Philadelphia.
Kristin Voorhees was diagnosed with Celiac Disease in 2007. Kristin decided she wanted to help others who suffer from the disease. While in school she shined and selected by National Foundation for Celiac Awareness.
Currently, Kristin is a Health Care Relations Manager for the National Foundation for Celiac Awareness in Ambler. Kristin was recently chosen to be apart of the Drug Information Association’s Patient Advocate Fellows.
Common symptoms of Celiac disease are diarrhea, nausea and no symptoms at all. Common misdiagnoses are irritable bowel syndrome and lactose intolerance. According to Kristin, Celiac disease affects 1 in 141 people and 83% have not been diagnosed yet.
Determining if a patient has Celiac disease is based on a blood test and then a biopsy of the patient’s small intestine.
“Through empowerment, education, advocacy and advancing research, the National Foundation for Celiac Awareness (NFCA) drives diagnoses of celiac disease and other gluten-related disorders and improves the quality of life for those on a lifelong gluten-free diet.” - NFCA’s Mission Statement.
“I was sickly my whole life. I developed thyroid disease after the birth of my first child, and after that I had constant aches and pains, but doctors couldn’t help or find anything wrong with me. All my tests would come back normal.
Two years ago after a very traumatic event, my stomach starting swelling severely after I ate. Many doctor appointments and tests later, I still had no answer. Out of desperation to feel better I took my health into my own hands and went gluten-free after much, much research. After a week of being gluten-free, I felt better for the first time in almost 10 years.
I started researching celiac disease and discovered a link to non-Hodgkin’s lymphoma. My dad died of non-Hodgkin’s lymphoma in 1988 at the age of 40. I decided to undergo genetic testing to see if I carry the gene, just so I knew. Sure enough, I carry the celiac gene as well as a gluten sensitivity gene. No wonder I’ve always been sick!
I’ve been gluten-free for almost 9 months now and have never felt better!”
“Thank heavens for investigative reports. One of our local news stations did a piece on celiac disease and some common ailments associated with it. “Wow,” was all I could say as I picked up the phone and called my doctor to schedule a blood test for celiac. Long story short, I’m 46 and have had tummy troubles in one form or another my entire life, plus debilitating migraines, infertility, thyroid problems, high cholesterol, and the list goes on.
I was ready to try just about anything to feel better. I am an active person, preferring cycling or skating outside, but I recently suffered from terrible fatigue that depressed me to no end.
My blood test came back negative, and I decided against undergoing a biopsy as I did not feel it was necessary at that point.
I’ve been gluten-free since August 13 and have honestly never felt this good in my life. Yes, it is incredibly hard to live without my comfort foods: dumplings, garlic bread, divine pasta, etc. But 20 minutes after the gluten hits me, I feel terrible, so giving up those foods is a sacrifice I’m willing to make.
Thankfully, I have the support of family and friends. Yes, it gets depressing going to the store, spending hours reading what is in every product, and paying through the nose for two small bags of food, but again, I have never felt this well in my life and I have no thoughts of giving in.
I have gradually lost weight as another poster mentioned – I think another 10 pounds will put me at my natural, sustainable weight. My muscle strength is very near where it was in my youth (just ask my 16 year old who can’t keep up with me on skates or a bike). My migraines are very well controlled – I haven’t had a bad one since July – and the insomnia is getting much better as well. I still take my sleeping pill, but now I actually sleep through the night.”
“I was diagnosed with dermatitis herpetiformis (DH) and celiac because, after 18 years of unexplained rashes that would come and go, my dermatologist actually got educated about it. The next time I came in with my rash (always in different place on my body), he got all excited and told me about DH, took a biopsy, and viola!Finally, I knew what was wrong with me. I had the celiac blood work done, followed by a biopsy and was confirmed I had traditional celiac with flattened villi, along with DH. I tried Dapsone and was violently ill, so I had to suffer with my rash until it finally went away after about 6 months of eating totally gluten-free.One of the most wonderful things about going gluten-free is that I feel good. I never realized I had a stomachache all the time, sometimes terribly, but always there, until it completely went away. Yea!My mom then was tested and she too is celiac. My sister and brother both have been diagnosed with multiple sclerosis, but won’t get tested for celiac. It makes me sad because I think they also have it, but they don’t believe me when I say they could perhaps relieve some of their symptoms by going gluten-free.”
I developed an ulcer in my throat 2 years ago and went to see a gastroenterologist for treatment. I ended up getting an endoscopy so he could get a better look. When I woke up, I was greeted with the familiar though startling line: “I have good news and bad news.”
It turned out that, while my ulcer was all but gone, the doctor noticed how smooth the walls of my intestines were. He told me that he thought I had celiac disease and had taken a biopsy during the procedure to confirm.
After the biopsy and a subsequent blood test both came back positive, I was officially diagnosed with celiac disease. I had never expressed any symptoms my entire life. Switching to the diet has not altered my health or how I feel, but I have stuck to it because I understand the long term repercussions that ingesting gluten can have on my body – even if I can’t feel it now.”
On March 13, 2013 Jennifer Esposito was a guest on the Today Show with a clip of the pilot episode for “Playing with Fire”. Jennifer Esposito is concentrated on awareness for Celiac Disease and making gluten-free meals. Jennifer is also the founder of Jennifers Way Bakery.
Candice Kumai, Daniel Koch, Julie Elkind, Derek Koch and Anna Boiardi
“Playing with Fire” is a reality series on E! that focuses on the lives of chefs in New York City. Candice Kumai is an Iron Chef judge and writer of two cookbooks “Pretty Delicious” and “Cook Yourself Sexy”. Daniel and Derek Koch own several venues including Day & Night, MPD and Toy. Julie Elkind is an Executive Pastry Chef and top chef at James Beard House in NYC. Anna Boiardi teaches a cooking class called Cucina Academy and released a book including authentic recipes from the Chef Boyardee Family.
Season 1 premiered on March 27, 2013 with “I Come First, You Come Second” episode and ended on April 26, 2013 with “Three’s a Crowd”. For more information on Playing with Fire, please click here.
Gwyneth Paltrow recently released her second cookbook “It’s All Good” on April 2, 2013. This low-carbohydrate and gluten-free cookbook was inspired after finding out she is vitamin D deficient and anemic.
There are 185 recipes that are free of wheat, dairy, eggs, soy, sugar, coffee, alcohol, shellfish, meat and processed foods. Recipes include Hummus Tartine with Scallion-Mint Pesto, Salmon Burgers, Huevos Rancheros, and Japanese Chicken Meatballs.
The recipe below is a sneak-peak into “It’s All Good”.
Italian-Style Fish Fingers
1 cup gluten-free plain bread crumbs (purchased or made from well-toasted gluten-free bread blended in a powerful blender with salt, pepper, oregano, and some Old Bay Seasoning)
1½ teaspoons dried oregano
1 teaspoon garlic powder
1 teaspoon fine sea salt
1 cup soy milk or rice milk
4 flounder, fluke, or sole fillets (or substitute skinless fillets of any flat, mild white fish), cut into fingers
Olive oil spray
Lemon wedges for serving
Preheat the oven to 450ºF and set on convection, if available. Line a baking sheet with parchment paper and set it aside.
Whisk together the bread crumbs, oregano, garlic, and salt. Coat the fish fingers with the soy or rice milk, then dredge them in the bread crumb mixture, tapping off any excess. Lay the fish fingers on the prepared baking sheet. Spray lightly with olive oil spray, turn fish fingers, and lightly spray the other side. Bake for 8 minutes, then turn your oven to broil and broil for 1 or 2 minutes, just to get the fish fingers nice and brown (if you don’t have a broiler, just bake them for 10 minutes total). Serve immediately with plenty of lemon.
Gluten Free is a popular topic for the rich and famous. ABCNews.com added a slideshow of Celebrities who are gluten-free and explain why they went on a gluten-free diet. Gluten sensitivity or intolerance has required some Stars to give up their eating habits.
Zooey Deschanel: Sensitivity to eggs, dairy and wheat.
Miley Cyrus:Intolerance to wheat and credited the diet for her weight loss.
Lady Gaga: Cut gluten from her diet in an effort to lose weight.
Keith Olbermann: Celiac Disease.
Jennifer Esposito:Celiac Disease.
Emmy Rossum: Celiac Disease.
Elisabeth Hasselbeck: Celiac Disease. Also, the writer of “The G-Free Diet”.
Drew Brees:Intolerance to Gluten.
Chelsea Clinton: Sensitivity to gluten, she is also a vegan.
Billy Bob Thornton: Intolerance for wheat, dairy and shell-fish.
Other Celebrities include Jessica Alba and Geri Halliwell who also suffer from intolerance to wheat. Whether it is for medical reasons or weight loss benefits, Celebrities are switching to a gluten-free diet.
Men, woman and children of any age or race are at risk for Celiac Disease. Higher-than-average risk include individuals with First or Second Degree relative with Celiac Disease, HLA-DQ2 or HLA-DQ8 Genes, Iron-Deficiency, Pre-mature Osteoporosis/Osteopenia, Type 1 Diabetes, Thyroid Disease, Reproductive Disorders, IBS, Liver Disease and Down Syndrome or Turner’s Syndrome.
Factors that can increase your risk for developing Celiac Disease:
First or Second Degree relative with Celiac Disease: It is more common for individuals with family history of Celiac disease because it is genetically based.
HLA-DQ2 and HLA-DQ8 Genes: Having HLA-DQ2 or HLA DQ8 genes means that you are at risk for developing Celiac Disease, but does not mean you absolutely have the disease. Approximately 95% individuals with Celiac Disease have HLA-DQ2 and approximately 5% have HLA-DQ8
A number of other diseases are related to Celiac disease.
Anxiety disorders affect about 40 million American adults age 18 years and older. There are several types of Anxiety disorders such as Generalized Anxiety Disorder, Obsessive Compulsive Disorder, Panic Disorder, Social Phobia and other Specific Phobias. Anxiety symptoms and severity differ depending on the type of disorder. Before and after Celiac Disease diagnosis, a number of stressors surface.
Pre-Diagnosis: Gastrointestinal issues, fatigue, insomnia, malabsorption and vitamin deficiency are factors of Anxiety prior to being diagnosed. Another common stressor is worrying about health issues. It is hard to determine if the anxiety and depression symptoms are related to life events or Celiac Disease.
Post-Diagnosis: Often, after diagnosis there are signs of relief, anxiety symptoms are not far behind. Cross-contamination with eating surfaces and utensils can lead to phobias and obsessive compulsive disorders. Nevertheless the challenges of disease management are the frequent cause of anxiety.
The biological inability of a person to contribute to conception is the primary description of Infertility. There are many combinations of factors that cause complications with conception. Factors that commonly can increase the risk for women and men’s infertility are Alcohol consumption, Drugs and Celiac Disease.
Patients diagnosed with Celiac Disease that are not following to a gluten-free diet are at risk for shortened reproductive period (early menopause), gonadal dysfunction (male), abortion, low birth weight and short-breast feeding periods.
A chronic neurological disorder that is a disabling headache that can be accompanied by or followed by flashes of light, blind spots or arm/leg tingling. A Migraine is moderate to severe pain on one side or both sides of the head that lasts a few hours to a few days. Sensitivity to light and sound, nausea, throbbing or pulsating pain that continues to worsen are common symptoms of a Migraine. Occasional symptoms are blind spots, flashes of lights, tingling/pins and needles in arms or legs.
Recent studies have shown that Migraines are a common neurologic indicator of Celiac Disease. Migraine sufferers are at a higher risk for Celiac Disease than those who do not suffer from Migraines. Patients diagnosed with Celiac Disease that follow to a gluten-free diet, Migraine pain is often improved.
The thyroid is a small gland located in the middle of the lower neck that produces T4 and T3 hormones, the quantity of these hormones are controlled by the pituitary gland located in the center of the skull below the brain. The two forms of thyroid disease are Autoimmune Thyroiditis, the most common which does not produce enough hormones, and Graves Disease, a rare disease but the most common of hyperthyroidism that produces too much hormone.
Celiac disease and Autoimmune Thyroiditis share a common genetic predisposition that may explain the higher occurrence of Celiacs with thyroid autoimmune disorders. If already diagnosed with Thyroiditis and recently diagnosed with Celiac Disease, a gluten-free diet might not be effective.
A mental disorder characterized by low mood, low self-esteem and loss of interest feelings that persist and interfere with ordinary life. The variance of normal sadness and depression are based on a few factors: Intensity, Length and Interference with daily life.
Celiac disease and depression are both associated with low levels of red cell folate or folate deficiency. Folate and B12 are important to the production of neurotransmitters which help regulate mood and other brain functions. Other factors for depression with Celiac disease are restrictive diet, sudden lifestyle changes, dietary compliance and poor absorption of vitamins and minerals.
The small intestine (small bowel) is located between the stomach and the colon, approximately 20 feet long. The crucial function of the small intestine is to digest and absorb nutrients. The most common type of small intestine cancer is adenocarcinoma; other types are carcinoid tumors, gastrointestinal stromal tumors and lymphomas.
If Celiac Disease goes undiagnosed or fails to follow the gluten-free régime, the chance of developing small intestinal cancer increases. Individuals with Celiac Disease have a compromised immune system and are more inclined to develop lymphomas in the small intestine.
With Osteoporosis is a disease of the skeletal system when the bone mineral density is reduced, the amount and variety of proteins in bone are modified and bone microarchitecture deteriorates.
Celiac disease is malabsorption and vitamin deficiency with the small intestine and can be deficient in the nutrients needed to maintain bone density such as calcium, vitamin D and vitamin K. After following a gluten-free diet there are studies that show improvements with bone density.
For more information about other related diseases such as: Dermatitis, Herpetiformis, Juvenile Idiopathic Arthritis, Peripheral Neuropathy, Type 1 Diabetes, Down Syndrome, Liver Disease, Sjogren’s Disease and Williams’s Disease , please click here.